Every child born into the world is a gift that God has entrusted to the family. Every parent also hopes that their children will be born and grow perfectly and healthy. However, God had other plans for Rusina and Jamhuriryani, a couple who live in Manarap Baru Village, Kertak Hanyar District, Banjar Regency, South Kalimantan.
The two of them were blessed with a third child, Noor Rizky, who suffered from hydrocephalus at a very young age. There was more fluid in Rizky’s head, causing his head to enlarge. To date, Rizky has undergone five operations to reduce fluid from his head.
“Oh Allah. When Rizky had the operation, I was the only one who accompanied him. His father had to work. Only at night did his father take the money to the hospital, the results of his work at the workshop. I had to leave the other two children. At that time they were still at school. The girl was still in grade 2 “He was in elementary school when Rizky underwent surgery. Starting from 15 days of fasting until Eid, Rizky was hospitalized. Rizky’s surgical stitches came loose and festered. In the hospital, he was alone with Rizki until Eid. I cried, people celebrated Eid in the village, we are here,” said Rusina to the merdekabaik.id team when we visited her residence.
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In this condition, Rizky, who is now 5 years old, could only lie weak. All his needs were prepared by his mother who dedicated all her time and energy for Rizky’s sake.
There was a challenge when Rusina had to give Rizky milk. For the past year, Rizky has been reluctant to drink milk from a bottle, until the doctor decided to install a tube or NGT into Rizky’s nose.
“If he doesn’t use an NGT, Rizky doesn’t want to drink milk using a bottle. For a year now he doesn’t want to suck. Even though I couldn’t bear to see when his nose was pierced during the NGT installation. The nurse who installed it told me to see how the process of inserting the tube was, but the child was in pain, I didn’t “I want to see. But if an NGT is not installed, Rizky will become skinny,” explained Rusina again.
Rizky/ Photo: merdekabaik.id
Moreover, Rusina was concerned about Rizky’s condition, who had recently become ill. He is also worried about his child’s future.
“I thought, if I die first, who will take care of my child. Meanwhile, the only person who understands the child is me as the mother. I strengthened myself. Actually, my heart is fragile, I want to cry when I see this child. I just need to be strong,” he said sadly. .
Since Rizky was sick, Rusina decided to stop working as a housemaid and farm laborer. The family’s living needs are now covered by the father who runs a workshop in front of his house. The income he earns is uncertain, but Jamhur focuses his energy on being sincere and painstaking in repairing his customers’ motorbikes.
“My income is uncertain, because I don’t want to repair motorbikes quickly like other people whose results are not good. Other workshops may work quickly because they are running out of time. But I am relaxed about working, as long as the results are good. The income is arranged. One day there may not be any. “who repairs motorbikes. But one day there could be lots of motorbikes queuing to be repaired, working day until night,” said Jamhur that afternoon.
Luckily, this couple was blessed with two other children who had the big heart to help. Their eldest son, Naim, is now twenty years old and works at one of the lodging houses in the local area. He also shares his income to help support his family’s economy. Meanwhile, their second child, Hikmah, always helps Rusina in looking after Rizky.
Rizky’s limitations also mean he has his own way of communicating with the people around him. Rizky is unable to utter words, but he still responds to the people around him through expressions and blinks.
Rizky/ Photo: merdekabaik.id
“Sometimes when Rizky is spoken to, he can respond. He can give signs, if at night he laughs happily, the next day someone will come, there will be good fortune. But if he stays silent, there is a problem. He can make an “ee ee” sound, if I come to accompany him, he sleeps. “I’m calm again. If I leave him again, he wakes up again. If he looks left and right there are people, he goes back to sleep,” said the father.
Even though they have to struggle to care for their youngest, Rusina and Jamhur continue to try. For the sake of the child’s recovery, for the child’s future, they will fight everything for the child. Good friends, you can help lighten the burden of medical costs for Rizky’s younger brother by donating to merdekabaik.id. Whatever donation you give, it will definitely help. Your donation will be distributed 100% to Rizky without any deductions.
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